It has been 3 years since Max got his brand new cells!

I think the magnitude of this miracle is best shown in pictures.

Transplant Day. 8/20/2009

                                                                    1 year post transplant.

2 years post transplant. 8/20/2011

Thank G-d! This is 3 years post transplant! 8/20/2012

Almost three years since the transplant!

I can't believe it has now been 7 months since I have updated this blog. I apologize to everyone reading and to everyone that gave up and is no longer reading. I understand.
We've gotten so used to our almost perfectly normal happy lives that I've lost track of the blog and even new MPS drugs. I guess I've gotten comfortable.
Max is doing well so far. We've tested his engraftment level monthly and the most recent result was 11%. His MRI and MRS has shown normal brain. We have some appointments coming up on September like ophthalmology since Max's right eye looks a little lazy sometimes when he relaxes. We also have ortho coming up and a visit with Doctor D. So far, thank G-d, no serious bone issues or brain issues although I am a little concerned about the ophthalmology visit and Max's eye health.
Max loves school and went to summer camp this year and loved all of the awesome field trips. I have been busy working and so has Roman. I guess this is pretty much what we were hoping for! Thank G-d!