Day 0

even though it's day 0, we did not get our cells today. everything is ok and the donor donated today. but because the cells need to be flown here and the blood needs to be filtered out, we will hopefully get our cells tomorrow (Day +1). max has slowly been feeling worse and worse, although not awful. he has been eating very little and today after eating 2 oz he threw up. actually he threw up a little in the morning, then a little more later, and finally a lot and all over mommy. so we made the decision to try putting in a feeding tube. its an NG Tube and it goes through his nose to his stomach. the nurses came and put it in through a lot of screaming and yelling at 4:30 pm. at 6pm max ripped it out through a lot of screaming and yelling. so we decided that we'll give him fluids at night through his central line and let him eat what he wants for the next couple of days and see if he increases his amount.

max's diaper rash is much better, not gone, but much much better.

max now can stick his tongue out and blow bubbles as well as say m, b, d, g on a regular basis!!! he was however too sick and tired to play with PT and ST when they stopped by so maybe we'll play and eat more tomorrow.



max's cell counts for today are:



WBC: .8

HGB: 22.8

Platelet: 506



for now, minus the non eating thing, the doctors are pretty happy with how max is doing so i guess i am too. as i write, max is laying on my bed chilling out, smiling and playing. but i don't want to jinx it. tomorrow is a big day.

p.s. THANK YOU to Nicole and Andrei for visiting me and making my day so much brighter!!!!!!!