Day +190

Max's engraftment from friday came up to 28% which is the highest rise in engraftment that we've seen. I'm only a little bit excited because there is no way of knowing what's happening next, and I'm tired of jumping and then sinking as the engraftment goes up and down. I want it to just go up to 100% already and stay there! Otherwise Max is still doing ok and I'm happy with that. Max's orthopedic appointment on tuesday went well - his kyphosis is still flexible, meaning that his back is only bent when he is sitting on his own and not all the time. This means that Max doesn't really need a brace yet and maybe won't need much intervention at all ever. We still get IVIG weekly and nothing else has really happened which is pretty great.