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Today was Max's hand surgery and it went pretty smoothly, thank G-d. Because he can't eat 8hrs. before surgery, we woke up at 4am to get a bottle of milk. Then, he had his last drink of apple juice at 8am so you can imagine he was rather hungry and so cranky as we got to the hospital at 11am today. Everything went smoothly and he went into surgery around 12:30 pm, right on time. The surgery took about 1.5 hrs. and the hand doctor came out to say that it went very well. In another 15 minutes I was holding my very cranky baby again and thanking G-d for returning him to me in good order. Max has a bandages on both hands that look like little boxing gloves and give him very little finger use. That so far hasn't stopped him from doing anything, except maybe taking off the hand dressings which is a good thing. Hopefully next week he can have them removed and until then, it's my job to keep them clean. I'm very happy to report that Max was still actively mischievous upon arrival at home and in a great mood. Just in case that changes and he has some hand pain, we have a prescription for Tylenol+Codeine for night time.
In other news, his engraftment is 17% this week.
I'm sook glad that Max's surgery went well! Good luck helping in while he's still got the mits on. I hope it's not too frustrating for both of you.
ReplyDelete17%? That's about where he's been for a while, right? Any hole that it's stabilizing?
So glad he's doing alright!!! Praying it stabilizes <3
ReplyDeleteThanks Todd, we're scheduled to take the dressings off Monday, so we just have to make it for 3 more days... As long as his fingers are better, I'll be ok with it. As for his engraftment, it's hard to tell. If it's stable and enough for his brain we could probably do ERT for a while until something else? It's all a big question?
ReplyDeleteElizabeth: Thank you! We just need that engraftment to go up a few points to get Max off that ERT! Just a teensy little bit! <3