Day -22 through Day -19 (Campath Days)

July 28, 2009 (yesterday) was our first day at Cincinnati Children's Hospital. we didn't get our first dose of campath until 11pm and the real fun started at 4am the next morning. max had a fever of 38.4C and threw up yellowish goo all over his blanket. he also missed his meal. happily there is a washer and dryer here so by 6am we had our blanket back. by 6:30am i went back to sleep for a few more hours.



July 29, 2009 (today) day -21. max woke up around 9am in a good mood and hungry. he was asleep again by 10am. at 2:30pm i woke him up because the nutritionist and speech therapist stopped by and it was time to eat. he was again in a good mood and impressed the speech therapist with his excellent sucking abilities. later he got a fever and was sick pretty much the rest of the day. At 10 pm he got his second Campath shot.

July 30, 2009 at 3:30 am Max woke up hungry and felt pretty cool so I fed him and changed him. I went to pump some more milk and when i was finished he had a fever of 38.5C. Then he threw up all of the milk i had just fed him. finally around 6am he went to sleep. He was sick all day and finally got the hives that everyone had been expecting in the afternoon. He was itchy everywhere and let us all know how he felt. They went away with an infusion of benedryl and hydrocortisone. i got a volunteer to sit with him while i ate and then another to sit with him so i could get to the store. by the way the United Dairy Farmers is a really expensive convenience store. later max felt better and got to skype with grandpa, uncle mark, and daddy. also we got a dressing change and another dose of Campath.

July 31, 2009 (day -19) we woke up at about 4 am hungry and ate about 6 ounces. Max had hives on his legs and arms this time, but no fever yet. The nurse gave him an iv dose of hydrocortisone and some tylenol by mouth to prevent a fever. It Worked!!! Max happily went back to sleep only to wake up again at 8:30ish hungry. He's been awake and playing all day. He loved his time with both the physical and occupational therapists who said that he was developmentally normal!!! Yay!! not that we had a lot of doubts, but him being sick does make us worry about that stuff too. He was hungry again at 1pm and even though he isn't eating as much at a time, he seems to be back on schedule. Now he's napping, hopefully the rest of the day will go at least as well as the first half.