engraftments

11%, 12%, then 11% again. we sent another one out today. we'll see.

2 years post transplant!

and its fabulous! other than our minor engraftment problem, Max is doing well. Thank G-d.

ok a real update!

We've been enjoying Max, and on Wednesday, it was his very first day of "school!" He loved it, and didn't even care or notice when we left, not for lack of trying on our part. I barely even got a picture. But that is good news, I'm glad that Max loves school and doesn't want to leave. The teachers say he's doing well, but we need to be potty trained for next year and the whole thing really stresses me out. Some bad news is that Max's engraftment from August 4th came back at 10%, and that's a new low. I've been looking at our numbers and it seems we get a new low every 3 months on average, but I hope it slows down. That's it for bad news, thank G-d.
More Good News:
Max was doing a weird squinting thing and so we were worried about his eyes and decided it was time to see an ophthalmologist. After a few tests and some drops in the eyes and some more tests Max's eyes were ruled to be perfectly fine and normal. Yay! Also, we had our semi-annual orthopoedic checkup and again everything is good. I was really scared about going in for x-rays, judging by the screaming performance of January, but this time Max was cooperative and perfect. We took pictures of his hips, knees and back. All good. Thank G-d.
So, mostly very good news, and the last engraftment we got back as 12%; a little better. I'm also praying that the brilliant scientists and researchers of the world come up with a better treatment ASAP. Even if the non brilliant scientists come up with the cure, that would be ok too.

first day of school

i know i owe an update. but all I'm doing is posting this video and going to bed :)

engraftment from 7/20/2011

13%