Wednesday, July 28, 2010

Day +341

engraftment: 15%

Tuesday, July 27, 2010

Day +340

Tomorrow we'll find out Max's engraftment level again. We're hoping for the very best!
Also, there's another thing I would like everyone's help with. It seems as though I have some trouble trusting in God to take care of Max. I notice a lot of families have the f.r.o.g. (fully rely on God) and others know that God is looking out for them and everything is for the best. I have looked into God's track record and it has been very impressive. Just in the last couple of years, God has brought us to KY where Max was diagnosed as soon as he was born and since then God made sure that our journey was very smooth. God made sure we were in Cincinnati, not Minnesota which is much farther away from home and countless of other miracles. We are so blessed and I am so grateful for everything. Why can't I fully trust that God will carry us through the rest of this? I just feel like I don't know God very well and can't trust what I don't know. For everyone that truly trusts and relies on God - how do you do it? Any suggestions?

Thursday, July 22, 2010

Day +335






engraftment: 17%

Here are some fun playtime pictures with Max!

Saturday, July 17, 2010

Day +330

Our orthopedist said Max looks great! He isn't too concerned about Max's back, but says that when we come back in 6 months, we'll have to take a good look at Max's hips and knees. So far though, as far as Max's bones are concerned, we're doing well.

Friday, July 16, 2010

Day +329

s It's Friday and Max is getting another DLI today. We had to wake up at 6 am to get here by 8:30 and we hope it's worth it. Later we're going for Max's orthopedist check up. Hopefully that will go well, and I'll try to update again to let everyone know what's new with Max's bones.

Tuesday, July 13, 2010

Day +326

After the big boost, the waiting, and everything else Max's engraftment is at 18%.

Monday, July 5, 2010

Day + 319

Sorry for the lack of updates, we've been having too much fun to sit down and write! Unfortunately I don't have any news about Max's engraftment. We have an appointment in Cincy on Thursday the 8th and that's when they'll test for it. So, until the 13th or 14th, we have no idea whats going on. I'm at this point willing to bet that nothing happened, but we'll see. Otherwise, Max is growing and learned to say "Deda" which means grandpa, and "Uff," his word for dog. He also finally says "Mama" and he's talking about me!!! We've been really enjoying our summer so far, but we're hoping still that we'll get some even better news regarding Max's engraftment. Thanks for checking on us, and I hope everyone had a fabulous 4th of July. I'll try to post as soon as we have some more news...