Sunday, January 23, 2011
Monday, January 17, 2011
Thursday, January 13, 2011
Saturday, January 8, 2011
we've been having too much fun to update
So Max had his DLI a few weeks back on a Tuesday and we went on vacation to Rochester and had a great time. Max got ERT at Children's Hospital in Buffalo (it was great and the nurses were awesome) and since we had no orders to take an engraftment level, we kind of enjoyed a vacation away from that too. It was very nice, we LOVE vacation!!! Max's engraftment level went from 16% in the last update, to 17% and then down to 14% the day of the DLI, before any cells were given. Now that we're back in Louisville, Max had ERT here and they took an engraftment level which we can now worry about until Tuesday or Wednesday of next week. I really enjoyed not worrying and just having fun with Max, but life is good so I can worry a little too. Enjoy 2011 and a happy belated new year to all. I'll post some pictures next time, I promise.
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