Day +103

since my last update, we've been to the er 3 times. we still have the same problem and still no one knows what is going on. our first trip to the er was the same friday that we were discharged. max started vomiting again and we expected a fever so we walked over to the hospital around 9pm. At about 2am we asked to go home since the fever never came and Max was already feeling better. Then on Sunday, Max had a fever in the morning and off we went again. The fever bought us a two day admission, even though it went away on its own and Max was feeling pretty good. Then we had a lovely thanksgiving break during which my family came to visit. Roman and I even went home for a couple of days to buy a washer/dryer set and visit friends! Yesterday everyone left and at 10:30ish Max started throwing up again. At 2 he had a fever, we went to the ER and 5 hrs later were back on the BMT floor, cranky and sleep deprived. Today, the speech therapist stopped by and we tried to feed Max solid food, which he has been completely uninterested in for the last few weeks. I'll put up the pictures from this traumatic event tomorrow or later tonight.
our engraftment went down to 76%. f.