Day +90

It's day +90 and we're still doing ok. Our engraftment level from friday is 88%, which isn't perfect but i was so scared it was going to be significantly lower that when i heard 88, i was really thrilled. I guess everything is relative. We did stop the cyclosporine today, so now we wait for what happens. So far, nothing has happened, but we're hoping for the engraftment to go up in the next few weeks. We were told that first it will go down some more, and then they expect it to rise again. I really hope so. Also, I hope we don't have to deal too much with GVHD because that would be unpleasant to say the least. As I was writing this Max woke up, I tried giving him some more milk and he threw up like crazy. i'll update later.

update:

i guess really its day +91 now that it's 6 am and we're still awake. After he threw up I called the BMT doctor on call and he said to just keep watching him and try to get him to hold down some water. Max didn't even want to drink the water. Also, he pooped what looked like diarrhea so I called the bmt on call and we decided that Max should go to the hospital. So off we went to the ER and sat (not in the waiting room, but a private room) and waited for the RN, then for the resident doc, then for the supervising doc, then for the rn again, then for them to reach the BMT docs. While we were there, Max pooped what looked like the pears he ate earlier. Seriously, the poop was a cream colored purree. The RN took samples of his blood and his weird poop. Max was given fluids at 2 am, and at 4 am he finally got his stress dose of steroids. Around the same time he finally spiked a fever of 38.3. At 4:30 am I noticed Max was feeling slightly better because he started sucking on his binky, something he uncharachteristically hadn't done since he started feeling sick. Then he got tylenol for his fever, and an antibiotic for any infection he may have. Finally, almost at 6, we were sent up to the BMT floor to our room, where we will stay for some days until we get to the bottom of Max's episodes.

I did speak to the BMT doc here in inpatient and he also believes its steroid withdrawal, but we'll see what grows in the cultures.

Good Morning and Good Night!