This morning still none of the cultures have grown anything, and now the dominant theory is that Max was going through steroid withdrawal. It has all the same symptoms that Max had and as soon as they gave the hydracortisone he felt better. So now we'll be getting steroids until Max starts making his own. Just in case there is some infection, they're still giving him antibiotics. Also, Max's engraftment level fell again to 94% and they're planning on decreasing the cyclosporine today, but dr. davies wants to do it gradually so that Max doesn't get GVHD. This worries me, because I wonder how far she's willing to let his engraftment fall before using more drastic measures. I also wonder if it won't be too late and we would lose our engraftment all together. Also, since we're in the hospital, I was woken up several times last night because our night nurse woke Max up every time she came to do vitals and whatever else. Not a good night in that respect. But Max is doing ok still so I'm quite happy with that.
Here are his numbers from this morning:
wbc - 4.4
rbc - 3.14
hgb - 9.7
platelet - 276
anc - 3.6
have a good day everyone.
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Yana, they removed Bella's steroids and CSA to improve her engraftment and it worked a little too well-that is when she got GVHD really bad. A little GVH is good when trying to increase the engraftment this way... She started removing things once Bella was at 67% so you all have a long way to go until that happens. Just remember 94% is still really good ours was all over the place for a little while from 94-100%.. It will take a little while to stabilize so try not to get worked up. I know it's easier said than done.
ReplyDeletePraying for both of you!
((hugs)) E
I also know families whose engraftment sits at in the teens and they are still fine and did not require a second BMT - I know it's easier said than done but try not to worry to much about this and just take it day to day.
ReplyDeleteGod Bless,
Erica www.caringbridge.org/wi/ericathiel
Thanks, and I know I shouldn't worry yet, but I think its better to start worrying too early than too late!
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